Michael is the founder of 11Health, the world’s first sensor network company focused on helping patients with long term chronic conditions who are connected to medical bags. He was diagnosed aged 12 with the incurable bowel condition Crohn's Disease. In late 2011 he became the 11th person to undergo a small bowel transplant in the UK at The Churchill Hospital in Oxford. More recently he is a two time cancer survivor. Michael started blogging about his journey and is a published author and patient mentor. He was the Co-Chair of NHS Digital Services User Council & helped implement the first Skype clinics in the UK. In 2015 he was announced as Stanford Medicine X first Patient-in-Residence and is an Executive Board member.
Keynote topic: are patients the key to successful research outcomes?
Jennifer Johannesen’s son, Owen, had multiple severe disabilities all his life. He died in 2010 at the age of 12. Jennifer’s experiences as Owen’s caregiver and advocate led her to ask broader questions about disability and society, special education and clinical healthcare practice. Specifically: why do we do what we do, and whom does it serve? Jennifer now writes, lectures and consults on healthcare practice and policy related to patient-centred care, patient engagement, and critical thinking in clinical practice. Jennifer recently earned a Master of Science in Bioethics from Clarkson University (Schenectady NY), and is based in Toronto Canada.
Christine L. Borgman, Distinguished Professor and Presidential Chair in Information Studies at University of California, Los Angeles (UCLA), is the author of more than 250 publications in information studies, computer science, and communication. This includes 'Big Data, Little Data, No Data: Scholarship in the Networked World (2015)',
from which she will draw material for her talk. She is a Fellow of the American Association for the Advancement of Science and of the Association for Computing Machinery. At UCLA, she directs the Center for Knowledge Infrastructures with funding from the Alfred P. Sloan Foundation and other sources.
Keynote title: Big Data, Little Data, or No Data? Systematic Reviews in an Age of Open Data
Sue Ziebland is Professor of Medical Sociology and Director of the Health Experiences Research Group (HERG) in the Nuffield Department of Primary Care Health Sciences, University of Oxford. Sue’s background is in medical sociology, with increasing focus on qualitative research approaches. Sue has worked as a researcher in the academic, NHS and voluntary sectors and has published over 180 papers and chapters in social science and health publications. She was a founding member of the DIPEX (now Healthtalk) project in 1999. HERG specialise in qualitative methods of understanding health experiences and using that understanding for experience-based health information, clinical education and service improvements.
Keynote title: Understanding and learning from patients' experiences: developing a global perspective
Margaret McCartney is a GP in Glasgow, columnist for the BMJ, and broadcasts for Radio 4's Inside Health. She has written three books, The Patient Paradox, Living with Dying, and The State of Medicine. She has interests in evidence, risk, screening, professionalism and ethics.
Keynote title: 'Everyday annoyances: why is evidence in real life so hard?'
Dr. Victor Montori is Professor of Medicine at Mayo Clinic. He is a practicing endocrinologist, researcher, and author and a recognized expert in evidence-based medicine and shared decision-making. Dr. Montori developed the concept of minimally disruptive medicine and works to advance person-centered care for patients with diabetes and other chronic conditions.
Keynote topic: Caring with evidence, minimally disruptive medicine, shared decision making